2019 Million Dollar Bike Ride Awardees

36 researchers across 24 institutions were awarded grants for 29 different rare diseases (listed below), with money raised from the 2019 Million Dollar Bike Ride. Over $2.2 million dollars were awarded in total.

APBD: Dr. Or Kakhlon, Hadassah Medical Organization

APBD: Dr. Baodong Sun, Duke University

CADASIL: Dr. Fabrice Dabertrand, University of Colordo Denver

Castleman: Dr. Ivan Maillard, University of Pennsylvania

CDKL5: Dr. Nicole Van Bergen, Murdoch Children's Research Institute

CF: Dr. Luis Juan Vicente Galietta, Fondazione Telethon - TIGEM

CHI: Dr. Thomas Smith, University of Texas Medical Branch

CHM: Dr. Katarina Stingl, University Eye Hospital Tübingen, Germany

CMD: Dr. Robert Bryson-Richardson, Monash University

CMT: Dr. Sylvia Ounpuu, Connecticut Children's Medical Center

CRB1: Dr. Jan Wijnholds, Leiden University Medical

CRB1: Dr. Konstantin Petrukhin, Columbia University Medical Center

DC: Dr. Daria Babushok, University of Pennsylvania

FD/MAS: Dr. Yingzi Yang, Harvard Medical School

FD/MAS: Dr. Julia Charles, Harvard Medical School

FOP: Dr. Jaymin Upadhyay, Boston Children's Hospital, Harvard Medical School

FOP: Dr. Shailesh Agarwal, Brigham and Women's Hospital, Harvard University

MPS Gene Spotlight: Dr. Igor Nestrasil, University of Minnesota

GLut1: Dr. Umrao Monani,  Columbia University

IBM: Dr. Steven Greenberg, Brigham and Women's Hospital

LAM: Dr. Carmen Priolo, Brigham and Women's Hospital, Harvard Medical School

LGDA/LMI: Dr. Julie Blatt, UNC Chapel Hill

ML4: Dr. Albert Misko, Massachusetts General Hospital

MPS: Dr. Andrea Ballabio, Fondazione Telethon, TIGEM

MSUD: Dr. Rebecca Ahrens-Nicklas, The Children's Hospital of Philadelphia

MSUD: Dr. Ehud Gazit, Tel Aviv University

NBIA(BPAN): Paul Lockhart, Murdoch Children's Research Institute

NEHI: Dr. Lisa Young, The Children's Hospital of Philadelphia

NPC: Dr. Mark Schultz, Regents of the University of Michigan

NUBPL: Dr. Marni Falk, Children's Hospital of Philadelphia

Pitt Hopkins: Dr. Andrew Kennedy, Bates College

RASopathies: Dr. Gregor Andelfinger, CHU Sainte Justine Research Center, Université de Montréal

SETBP1: Dr. Carl Ernst, McGill Uniersity

SRS: Dr. Robert A. Casero, Jr., Johns Hopkins School of Medicine

STXBP1: Dr. Matthijs Verhage, Vrije Universiteit Amsterdam

STXBP1: Dr. Zachary Grinspan, Weill Cornell Medicine