Awarded Grants

The ODC offers over 50 grant opportunities in 30+ disease areas annually to researchers across the globe, as well as within the Penn and CHOP communities. Since 2011, our grant programs have funded $17.2 million in rare disease research.

See below for a complete list of ODC-awarded grants since 2011.

Click HERE for the full list of 2018 Million Dollar Bike Ride Pilot Grant Awardees!

Awarded Grants

Displaying Results 11 - 20 of 216

Awardee Project Title Institution Grant Amount Funding Year
Amanda Ackermann, MD, PhD Vitamin E Supplementation in Hyperinsulinism/Hyperammonemia Syndrome Children's Hospital of Philadelphia MDBR - Congenital Hyperinsulinism $84,080 2019
May Aung-Htut, PhD Could exon skipping strategies be used as a treatment for recessive Ullrich Congenital Muscular Dystrophy? Murdoch University MDBR - Congenital Muscular Dystrophy $50,699 2019
Suneet Agarwal, MD, PhD Small molecule modulators of telomerase as novel treatments for dyskeratosis congenita Boston Children's Hospital MDBR - Dyskeratosis Congenita $100,373 2019
Andrew Kennedy Tissue-specific and temporal reinstatement of Tcf4 function to treat Pitt-Hopkins Syndrome Bates College MDBR - Pitt Hopkins Syndrome $51,242 2019
Charles Hoffman, PhD Identification and characterization of novel cell-permeable, small molecule adenylyl cyclase inhibitors for future development as drugs to treat FD/MAS Boston College MDBR - Fibrous Dysplasia/McCune Albright Syndrome $68,185 2019
Fernando Fierro, PhD Single cell transcriptome analysis of skeletal stem cells derived from FD/MAS patients University of California Davis MDBR - Fibrous Dysplasia/McCune Albright Syndrome $68,185 2019
Julie B. Eisengart, PhD, LP Biomarker correlates of neurocognitive outcomes in the cerebrospinal fluid in MPS I University of Minnesota MDBR - Mucopolysaccharidoses $103,560 2019
Shoshana Greenberger, MD, PhD Role of NRAS mutations in the pathology of generalized Lymphangiomatosis anaomaly (GLA) Sheba Medical Center and Tel-Aviv University MDBR - Generalized Lymphatic Anomaly/Gorham-Stout Disease $50,535 2019
Andrea Del Fattore, PhD Analysis of crosstalk between regulatory T and bone cells in Gorham-Stout disease Bambino Gesù Children’s Hospital MDBR - Generalized Lymphatic Anomaly/Gorham-Stout Disease $50,535 2019
Elizabeth Henske TFEB and Lysosomal exocytosis to prevent lung destruction in LAM Brigham and Women's Hospital MDBR - Lymphangioleiomyomatosis $50,242 2019
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