Awarded Grants

The ODC offers over 50 grant opportunities in 30+ disease areas annually to researchers across the globe, as well as within the Penn and CHOP communities. Since 2011, our grant programs have funded $17.2 million in rare disease research.

See below for a complete list of ODC-awarded grants since 2011. 

Full list of CDKL5 Program of Excellence Awardees

Awarded Grants

Displaying Results 31 - 40 of 175

Awardee Project Title Institution Grant Amount Funding Year
Andrew Kennedy, PhD Epigenetic Therapy to Treat Pitt-Hopkins Syndrome (PTHS) Bates College MDBR - Pitt Hopkins Syndrome $49,263 2018
Benjamin Philpot, PhD Pilot study to identify small molecule activators of TCF4 as a treatment for Pitt-Hopkins syndrome University of North Carolina, Chapel Hill MDBR - Pitt Hopkins Syndrome $49,263 2018
Kartik Venkatachalam, PhD Targeting Endolysosomal Proteins to Treat RASopathies McGovern Medical School, University of Texas Health Science Center at Houston MDBR - RASopathies $47,189 2018
Robert Casero, PhD Self-immolating NanoSpermine (nSpm) as a novel treatment approach to restore normal spermine/spermidine ratios in Snyder-Robinson Syndrome (SRS) models John Hopkins University School of Medicine MDBR - Snyder-Robinson Syndrome $42,866 2018
Grace Zhai, PhD Mechanisms of mitochondrial toxicity in Snyder-Robinson Syndrome University of Miami Miller School of Medicine MDBR - Snyder-Robinson Syndrome $42,866 2018
Igor Nestrasil, MD, PhD Brain MRI signatures in infants with infantile forms of GM-1 and GM-2 University of Minnesota MDBR - Tay-Sachs, Sandhoff, GM-1, or Canavan Disease $42,419 2018
Yingzi Yang, PhD Mechanistic and Therapeutic Studies of Fibrous Dysplasia in a New Mouse Model Harvard School of Dental Medicine MDBR - Fibrous Dysplasia/McCune Albright Syndrome $53,614 2018
Denise Adams, MD Retrospective analysis of the safety and efficacy of lymphatic anomalies of the bone (Generalized Lymphatic anomaly (GLA), Gorham Stout Disease (GSD), Channel type Lymphatic Malformation (CTLM)) treated with mTOR inhibition and bisphosphonates Boston Children's Hospital MDBR - Generalized Lymphatic Anomaly (lymphangiomatosis) & Gorham-Stout Disease $51,109 2018
Doug Epstein, MSc, PhD Hearing Loss Program of Excellence Feasibility Pilot Grant University of Pennsylvania POE - Hearing Loss $60,000 2017
Edward Behrens, MD Hemophagocytic Syndromes Program of Excellence Feasibility Pilot Grant Children's Hospital of Philadelphia POE - Hemophagocytic Syndromes $60,000 2017
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