Mechanistic and Therapeutic Advances in Rare Skeletal Diseases

September 26, 2018 - April 27, 2018

8:00 am - 7:00 pm

Montreal, Canada

A meeting jointly organized by the Rare Bone Disease Alliance (RBDA) and the Brittle Bone Disorders Consortium of the NIH Rare Diseases Clinical Research Network to bring together scientists interested in rare bone disease. The program will cover state of the art topics in diagnosis, preclinical mechanisms of disease, clinical targeting of signaling pathways, and novel clinical endpoints for assessment of efficacy.

Mechanistic and Therapeutic Advances in Rare Skeletal Diseases

Mechanistic and Therapeutic Advances in Rare Skeletal Diseases


September 26, 2018-


April 27, 2018



8:00 am -

7:00 pm

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ZC4H2 Deficiency Think Tank (Inquire if interested)

ZC4H2 Deficiency Think Tank (Inquire if interested)


September 20, 2018


9:00 am -

5:30 pm

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Crigler-Najjar Syndrome Symposium in London

Crigler-Najjar Syndrome Symposium in London


June 08, 2018-


June 09, 2018



9:00 am -

5:30 pm

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RARE Patient Advocacy Symposium

RARE Patient Advocacy Symposium


May 19, 2018


7:00 am -

4:30 pm

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Million Dollar Bike Ride Information Session

Million Dollar Bike Ride Information Session


April 12, 2018


6:15 pm -

7:30 pm

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Rare Disease Day

Rare Disease Day


February 28, 2018


5:00 pm -

6:30 pm

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CDKL5 Forum in Boston

CDKL5 Forum in Boston


November 29, 2017-


November 30, 2017



9:00 am -

5:30 pm

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Deciphering Beckwith-Wiedemann Syndrome

Deciphering Beckwith-Wiedemann Syndrome


July 21, 2017-


July 23, 2017



9:00 am -

5:30 pm