Grant FAQs

See below for frequently asked questions regarding your Orphan Disease Center grant. If your question is not answered below, please email ODC Assistant Director Samantha Charleston.

Q. How do I apply for a no-cost extension (NCE) on my ODC grant?

A. Click here to complete our NCE application form. Once your form is submitted, we will review the request and reply to you directly regarding the status of your NCE. No Cost Extensions must be submitted to ODC at least one month prior to the award end date. The maximum NCE allowable length is 12 months.

Q. How do I request a budget revision for my awarded grant? 

A. Please complete this budget revision template and email Samantha Charleston with your budget modification request and completed template. Email must include your grant award number for reference. 

Q. Who do I contact for questions about my award funding and invoicing?

A. Please email ODC Director of Finance, Matt Orlando, for questions about your award invoicing and other finance-related questions.

Q. Who do I contact for questions about my CDKL5 Pilot Grant?

A. Please email Daniel Lavery, PhD, CDKL5 Program of Excellence Director for questions about your CDKL5 Pilot Grant.

Q. Who do I contact for questions about the Million Dollar Bike Ride (MDBR) Pilot Grant Program?

A. Please email Samantha Charleston for questions about the MDBR Pilot Grant Program.