The Orphan Disease Center's Jump Start program serves to establish and progress research agendas in emerging and neglected rare diseases. The Jump Start program partners with patient groups and families to address gaps by identifying key opinion leaders and introducing new researchers to a disease. The program can help facilitate the development of animal models, establish a patient alliance or a patient registry, and organize symposia. Due to limited resources, ODC is unable to provide financial support. Jump Start primarily offers scientific advisement and network outreach.
If you are a parent, patient group, or foundation focused on facilitating research for a rare disease, please email Samantha Charleston at firstname.lastname@example.org to find out more.