Jump Start

The Orphan Disease Center's Jump Start program serves to establish and progress research agendas in emerging and neglected rare diseases. The Jump Start program partners with patient groups and families to address gaps by identifying key opinion leaders and introducing new researchers to a disease. The program can help facilitate the development of animal models, establish a patient alliance or a patient registry, and organize symposia.

If you are a parent, patient group, or foundation focused on facilitating research for a rare disease, please email Ashley Winslow at awinslow@upenn.edu to find out more.

Jumpstart Partners

ZC4H2 Deficiency Research Foundation

ZC4H2 Deficiency Research Foundation