Pilot POE Awardees

The ODC Pilot Programs of Excellence Grant helps Penn and CHOP investigators to engage rare disease communities (patients, clinicians, industry) and build appropriate resources across these communities to improve standards of care or therapeutic development.

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2017 Pilot POE Awardees:

Edward Behrens, MD - Hemophagocytic Syndromes, University of Pennsylvania and The Children's Hospital of Philadelphia

Douglas J. Epstein, PhD - Hearing Loss, University of Pennsylvania

Saar I. Gill, Md, PhD & Brendan M. Weiss, MD - Amyloidosis, University of Pennsylvania

Thomas A. Jongens, PhD - Fragile X Syndrome, University of Pennsylvania

Jennifer M. Kalish, MD, PhD - Beckwith Weidemann Syndrome, University of Pennsylvania and The Children's Hospital of Philadelphia