5 Rare Disease Calls

 
 

Make an Impact this Rare Disease Day by making 5 Rare Disease calls on your organization and communities behalf.

See below 5 calls with topics to address:


Say NO to cuts to NIH

Dial 202-224-3121 or look up who to call

Find your representative

Leave Voicemail:

  • I am your constituent / I am a constituent of MY TOWN

  • I support robust funding to the NIH

  • Cutting NIH funding would affect me negatively because it would impact research in MY DISEASE which affects myself/family member/loved one The NIH indirect cost cuts harms research and patients and must be reversed immediately

  • I would support only public servants who will not vote in favor of any legislation that reduces NIH funding.


Support National Institutes of Health (NIH)

Dial 202-224-3121 or look up who to call

Find your representative

Leave Voicemail:

  • I am your constituent / I am a constituent of MY TOWN

  • NIH funds and conducts innovative rare disease research, without which rare diseases would go unstudied, and therapy development would be nearly impossible.

  • Tell how this personally impacts your community

Support Food and Drug Administration (FDA)

Dial 202-224-3121 or look up who to call

FFind your representative

Leave Voicemail:

  • I am your constituent / I am a constituent of MY TOWN

  • FDA partners with rare disease researchers, patient communities, and medical product developers to advance the science of the design, development and evaluation of safe and effective treatments.

  • Tell how this personally impacts your community

Support Centers for Disease Control and Prevention (CDC)

Dial 202-224-3121 or look up who to call

Find your representative

Leave Voicemail:

  • I am your constituent / I am a constituent of MY TOWN

  • CDC works to protect public health by conducting research, providing health information, and responding to health threats.

  • Tell how this personally impacts your community