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Director, Jumpstart Program

Jumpstart is a program we initiated where we work with a variety of rare disease groups to help them establish a research agenda. We get many inquiries in the ODC about what a parent or foundation can do next to find a cure, and it all begins with research. Many of these diseases have no funding and little happening in terms of research toward drug development. We learn what exists in their disease space and identify what the appropriate next steps would be to initiate/progress research in their disease. In some cases, the conversation advances to a partnership with the ODC....

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