Million Dollar Bike Ride 2020 Pilot Grant Program

The ODC is offering 38 research opportunities focusing on 29 different rare diseases. This program provides a one-year grant to support research related to a rare disease represented in the 2020 Million Dollar Bike Ride. Number of awards and dollar amounts vary per disease based on fundraising totals by each disease team.  


Now accepting full applications by invitation onlyIf you have been invited to apply, please follow the steps below.

To Apply:


  1. Review the 2020 MDBR RFA Guidelines.

  2. Refer to the MDBR Application Template and Budget Template to complete your proposal.

  3. Complete the Application Form on Submittable (applications are uploaded on this form). Use your existing Submittable login credentials to access this form. 

This Request for Applications is open to the international research community


Research Areas for the 2020 MDBR Grant Program:


  1. Adult Polyglucosan Body Disease (APBD)
  2. Ataxia-Telangiectasia (A-T)
  3. BPAN- A Neurodegeneration with Brain Iron Accumulation Disorder
  5. Castleman Disease
  6. Choroideremia
  7. Congenital Hyperinsulinism (CHI)
  8. Congenital Muscular Dystrophy (CMD)
  9. Charcot Maire Tooth (CMT)
  10. Cohen Syndrome (COH)
  11. Nonsense Mutations in Cystic Fibrosis
  12. Dyskeratosis Congenita & Telomere Biology Disorder
  13. Fibrous Dysplasia/McCune Albright Syndrome
  14. Fibrodysplasia Ossificans Progressiva (FOP)
  15. Generalized Lymphatic Anomaly (GLA; a.k.a. lymphangiomatosis) and Gorham-Stout Disease (GSD)
  16. Glut1 Deficiency Sundrome
  17. Inclusion Body Myositis (IBM)
  18. Lymphangioleiomyomatosis (LAM)
  19. Mucopolysaccharidoses (MPS)
  20. MPS Gene Spotlight: Mucopolysaccharidosis (MPS I)
  21. Maple Syrup Urine Disease (MSUD)
  22. Mitochondrial Complex 1 Deficiency Disorder - NUBPL
  23. Neuroendocrine cell Hyperplasia of Infancy (NEHI)
  24. Niemann Pick Type C (NPC)
  25. Pitt Hopkins Syndrome (PTHS)
  26. RASopathies
  27. SETBP1 Disorder
  28. Snyder-Robinson Syndrome (SRS)
  29. STXBP1 Encephalopathy
  30. TBCK Syndrome

Letter Of Interest Deadline


Application Deadline


# of Awards


Total Amount