RARE Patient Advocacy Symposium

May 19, 2018

7:00 am - 4:30 pm

Philadelphia, PA

Registration is now open for the third annual RARE Patient Advocacy Symposium, being hosted Saturday, May 19! Global Genes, in partnership with the Penn Medicine Orphan Disease Center at the University of Pennsylvania's Perelman School of Medicine, will present the RARE Patient Advocacy Symposium, an educational event connecting rare disease patients and advocates, industry stakeholders, foundations, medical researchers, and healthcare professionals. The compelling agenda for this one-day event will emphasize the drug development process.

MPS Symposium

MPS Symposium


July 10, 2017-


July 11, 2017



7:00 am -

5:00 pm

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Million Dollar Bike Ride

Million Dollar Bike Ride


May 20, 2017


7:30 am -

5:00 pm

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RARE Patient Advocacy Symposium

RARE Patient Advocacy Symposium


May 19, 2017


7:00 am -

4:30 pm

Hearing Loss Symposium

Hearing Loss Symposium


April 25, 2017


7:30 am -

5:30 pm

Porcine Models Seminar

Porcine Models Seminar


December 15, 2016


11:30 am -

2:00 pm

Angelman Syndrome Gene Therapy Think Tank

Angelman Syndrome Gene Therapy Think Tank


December 03, 2016


8:30 am -

5:30 pm

SMA Symposium

SMA Symposium


September 30, 2016-


October 01, 2016



7:00 am -

5:30 pm

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Crigler-Najjar Syndrome Symposium

Crigler-Najjar Syndrome Symposium


June 09, 2016-


June 10, 2016



8:00 am -

5:00 pm

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