RARE Patient Advocacy Symposium

May 19, 2018

7:00 am - 4:30 pm

Philadelphia, PA

Registration is now open for the third annual RARE Patient Advocacy Symposium, being hosted Saturday, May 19! Global Genes, in partnership with the Penn Medicine Orphan Disease Center at the University of Pennsylvania's Perelman School of Medicine, will present the RARE Patient Advocacy Symposium, an educational event connecting rare disease patients and advocates, industry stakeholders, foundations, medical researchers, and healthcare professionals. The compelling agenda for this one-day event will emphasize the drug development process.

RARE Patient Advocacy Symposium

RARE Patient Advocacy Symposium


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7:00 am -

4:30 pm

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April 15, 2016



9:00 am -

5:30 pm

Castleman Disease Symposium

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November 21, 2015



9:00 am -

5:30 pm

DMD Symposium

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April 03, 2015



9:00 am -

5:30 pm

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3:30 pm

Drug Discovery for Nonsense Mutations in Cystic Fibrosis

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January 20, 2015-


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8:00 am -

5:00 pm

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