Rare Disease Day

February 28, 2018

5:00 pm - 6:30 pm

Jordan Medical Education Center Atrium, 5th Floor, 3400 Civic Center Blvd Philadelphia, PA

Join us on Rare Disease Day to recognize the rare disease community and kick off the 5th Annual Million Dollar Bike Ride!

Rare Disease Day

Rare Disease Day


February 28, 2018


5:00 pm -

6:30 pm

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CDKL5 Forum in Boston

CDKL5 Forum in Boston


November 29, 2017-


November 30, 2017



9:00 am -

5:30 pm

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Deciphering Beckwith-Wiedemann Syndrome

Deciphering Beckwith-Wiedemann Syndrome


July 21, 2017-


July 23, 2017



9:00 am -

5:30 pm

MPS Symposium

MPS Symposium


July 10, 2017-


July 11, 2017



7:00 am -

5:00 pm

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Million Dollar Bike Ride

Million Dollar Bike Ride


May 20, 2017


7:30 am -

5:00 pm

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RARE Patient Advocacy Symposium

RARE Patient Advocacy Symposium


May 19, 2017


7:00 am -

4:30 pm

Hearing Loss Symposium

Hearing Loss Symposium


April 25, 2017


7:30 am -

5:30 pm

Porcine Models Seminar

Porcine Models Seminar


December 15, 2016


11:30 am -

2:00 pm