The Orphan Disease Center's JumpStart program serves to establish and progress research agendas in emerging and neglected rare diseases. The JumpStart program partners with patient groups and families to address gaps by identifying key opinion leaders and introducing new researchers to a disease. The program can help facilitate the development of animal models, establish a patient alliance or a patient registry, and organize symposia.  Due to limited resources, ODC is unable to provide financial support.  JumpStart primarily offers scientific advisement and network outreach. 

If you are a parent, patient group, or foundation focused on facilitating research for a rare disease, please email Debbie Requesens at dreques@upenn.edu to find out more.