RARE Drug Development Symposium

June 06, 2019 - June 07, 2019

9:00 am - 5:30 pm

The Philadelphia 201 Hotel

The Orphan Disease Center, in partnership with Global Genes, hosts the annual RARE Drug Development Symposium designed to connect, educate and inspire rare advocates. The Symposium focuses on the drug development process and the role of rare disease advocates.

RARE Drug Development Symposium

RARE Drug Development Symposium


June 06, 2019-


June 07, 2019



9:00 am -

5:30 pm

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Rare Disease Day

Rare Disease Day


February 28, 2019


4:00 pm -

6:00 pm

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Mechanistic and Therapeutic Advances in Rare Skeletal Diseases

Mechanistic and Therapeutic Advances in Rare Skeletal Diseases


September 26, 2018-


April 27, 2018



8:00 am -

7:00 pm

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ZC4H2 Deficiency Think Tank (Inquire if interested)

ZC4H2 Deficiency Think Tank (Inquire if interested)


September 20, 2018


9:00 am -

5:30 pm

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Crigler-Najjar Syndrome Symposium in London

Crigler-Najjar Syndrome Symposium in London


June 08, 2018-


June 09, 2018



9:00 am -

5:30 pm

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RARE Patient Advocacy Symposium

RARE Patient Advocacy Symposium


May 19, 2018


7:00 am -

4:30 pm

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Million Dollar Bike Ride Information Session

Million Dollar Bike Ride Information Session


April 12, 2018


6:15 pm -

7:30 pm

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Rare Disease Day

Rare Disease Day


February 28, 2018


5:00 pm -

6:30 pm

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