February 28th is International Rare Disease Day!

Help us spread awareness during International Rare Disease Day! Watch and share our video to help educate young people about what it means to have a rare disease, and the critical role that doctors, scientists, caregivers, genetic counselors, and others play in supporting the rare community.

For a population with so few dedicated resources and access to life-saving interventions, we are hopeful that reaching a young audience will plant the seed for future involvement. Further, we hope to help destigmatize what it means to live with a rare disease, especially for young children who lack the appropriate knowledge on the many conditions (7,000+!) that exist.  Learning about rare diseases also provides an opportunity to teach kids about diversity and inclusion, for those who may look or function differently than they do.

One in ten Americans is living with a rare disease, which means our classmates, colleagues, and friends may be affected, often without us even knowing. We hope you will join us in recognizing this important day for the rare disease community, and help us equip our students with the knowledge and resources to get involved.  

Are you an educator or school administrator? Please consider incorporating this video into your curriculum for the week! 

Learn More

For more information about Rare Disease Day, visit www.rarediseaseday.org