The ODC is offering 39 research opportunities focusing on 31 different rare diseases. This program provides a one-year grant to support research related to a rare disease represented in the 2023 Million Dollar Bike Ride. Number of awards and dollar amounts vary per disease based on fundraising totals by each disease team.

Letter of Interest (LOI) Applications are Due Friday, September 15th, 2023 by 8pm ET

To Apply:

1. Please review the Request for Applications (RFA)

2. Complete the Application Form on Submittable.

The MDBR 2023 Pilot Grants are open to the international community holding a faculty‐level appointment at an academic institution or a senior scientific position at a non-profit institution or foundation.

Prior MDBR award recipients must have current and updated project reporting to be eligible for selection.

Research Areas for the 2023 MDBR Grant Program:

1. Adult Polyglucosan Body Disease (APBD)

2. Ataxia-Telangiectasia (A-T)

3. BPAN- A Neurodegeneration with Brain Iron Accumulation Disorder

4. CACNA1A

5. CADASIL

6. Castleman Disease

7. CDKL5 Deficiency Disorder

8. Choroideremia (CHM)

9. Complex Lymphatic Anomalies (CLA)

10. Congenital Hyperinsulinism (CHI)

11. Congenital Muscular Dystrophy (CMD)

12. Cohen Syndrome (COH)

13. Dup15q

14. Dyskeratosis Congenita & Telomere Biology Disorder

15. Fibrous Dysplasia/McCune Albright Syndrome

16. Glut1 Deficiency Sundrome

17. KCNT1

18. Lesch-Nyhan Syndrome (LNS)

19. Lymphangioleiomyomatosis (LAM)

20. Mucopolysaccharidoses (MPS)

21. MPS Gene Spotlight: Mucopolysaccharidosis (MPS I)

22. Neuroendocrine cell Hyperplasia of Infancy (NEHI)

23. Niemann-Pick Type C (NPC)

24. Pitt Hopkins Syndrome (PTHS)

25. RASopathies

26. Ring 14

27. SCN2A

28. SETBP1 Haploinsufficiency Disorder

29. STXBP1 Encephalopathy

30. SynGAP1

31. TBC1D24

32. ZC4H2